Video instructions and help with filling out and completing Are Form 843 Managerial

Instructions and Help about Are Form 843 Managerial

Halina J H Johnson the Lupus Liars conversations with lupus unscripted Music alright alright alright I am so excited that I have the opportunity to talk with dr. edith williams from mu NC that's the Medical University of South Carolina she's from the center of health disparities research she's acting with the division of Rheumatology and I just cannot over overstate how wonderful it is to know how this particular researcher fails into understanding the human side of research um edith is one of those ones which i've had an opportunity to actually work with dr. Elam and she should see just the right person for empowering and and talking about how things are affecting the African American community and all of those who are affected by lupus and Edith welcome thank you so much Halima thank you so much for putting this interview on and for having me with you and just inviting me to speak to all of your contacts and friends and loved ones in your community so I appreciate the opportunity thank you thank you thank you as I got relaxed and said eating runny to dr. eaters while I'm on the evening wear it is always wonderful speaking with you with all the great things you're doing and I'm just excited to have a opportunity because what I had a chance to do was post information about what we're getting ready to talk about the PAL study and you're going to tell us more about it but I got a chance to post and people are just so much interested in this um this type of research study and I'm just excited to have a chance to talk with you about it I was reading some of your bio and I'm just to get to know you a little better before we dive in to delve into it um so you began with your interest in lupus with the Buffalo lupus project yes that's right so I started working with the Buffalo lupus project as a graduate student so that was my first encounter with lupus as a disease with people who had lupus and it was so moving for me I'm working on that project that I said well this is this is what I need to do for the rest of my life so so I that is awesome um and so do you have any if you don't mind me asking do you have any family members that are diagnosed with lupus no I don't the closest connection I have is my mom she has rheumatoid arthritis but but that's actually happened later in life for her so I didn't have an experience with autoimmune disease or anything like lupus growing up it wasn't until I was in graduate school at Buffalo and kind of thrown into this project and even that project it wasn't it wasn't like just studying lupus on paper I was kind of immersed into the families of people with lupus and visiting the homes of women especially African American women with lupus and just doing life with them getting to know about their routines and their daily life and all of their struggles even outside of their illness just what they had to do to make sure that they could still carry on life as usual for their their husbands and children and friends and so that's really what drew me into lupus as a research direction for myself it's just how superhuman these ladies were that I got to know that they carried on you know life even more confidently and proficiently than some professionals who didn't have a care in the world they were just so - it about keeping things going even when like some of them would say they woke up feeling like they were hit by a truck every morning or you know they had all these medications to keep under control a lot of them were on dialysis and you know had a lot of other things going on and I said if there is anything I can do to make life better for these women these sisters of mine then I'm gonna do it you know I'll use whatever I can whatever ability or skills or intelligence I have yeah and you know and use it that way channel it that way I think that's awesome thank you so much for that uni-beam surrenders agonal to look at an african-american woman female myself but what what you said really brings us into this pal study you were talking and involved in what's going on in their home life and a lot of research studies only look at the blood work or they want you to come in and get a test and so you're really talking about what one of the things you put in your formula that I was reading about the the psychosocial stress and and things that can be done beyond the peels and stuff that we take for this disease you're looking at things that involve that emotion that involved by real life and I think that is so awesome that's right and I think that's so critical and you're right it is missing in a lot of our health research is just a lot of people ignore that we are human beings we are creatures of relationships you know relationships that we form the relationships around us are so intertwined with who and what we are that they can affect our health and our well-being and you know I'm sure you me everyone listening can think of a relationship that negatively impacted someone's help you know those toxic relationships and then there are those relationships that can heal and improve you know outcomes in someone's life and I think it's if we ignore that then we're ignoring a whole component of how to be well and things that can be risk factors for us

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